
Baba brought NJ after picking him up early from school. NJ showed me a whole big folder of work that he was sent home with. I loved seeing all the cool stuff he did. They left before traffic started though to make it back for open house and the science fair.
I was so, so sad to be missing NJ's open house. I don't get to see all his work plastered all over the classroom, how his work has improved, how the teacher decorated the room, say hi to the other parents and talk to the teacher. I won't be there to see him glow with pride, show us around, talk to his friends and teacher, or to congratulate him on his hard work. Maybe it's a bit over dramatic, but this is what I hate most about being sick. Missing these moments. I know it's not the end of the world, it's a tiny thing in the big scheme of things. But it's just another thing that's chipping away at me through a lifetime of missing things. Instead, here I am by myself. Another thing that made me sad today... I needed a new IV. I used to care less about it, but now it's a pain because my veins have been so over used throughout my life that it always takes a few tries. What happen to it being super easy and nearly painless?! I must be getting old and my body is waring down. They also started me on the IVIG treatment. Felt pretty awful during and after. The good news is, I have wonderful, loving friends that went to NJ's open house as my proxy and in support of him. Can't thank you all enough for your support... Uncle Dan, Auntie Becca, Uncle Wayne, Auntie Charmy, and little Joshua. NJ is blessed to have you (and so are we)!
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