Saturday, May 9, 2015

NJ was very happy to play games with Auntie Becca and Uncle Dan! Apples to Apples, Spot It, and Scrabble Slam! I didn't get photos, but I got more visitors today and into the evening. I was surprised to see the whole family of four and another friend who left her baby with family to come by to see me. It was really great to see everyone! I really felt the love. And they brought all kinds of gifts and cards. Totally not necessary! (Thank you Pete, Susan, Chloe, Ryan, and Phebe!)
NJ wanted some water and poured some for our guests too. :) 
To my surprise and everyone else's, they gave the ok to go home! What?! Did not expect that at all! It's been two weeks. What a relief, it's been two full weeks already and I'm not sure how much more I can take. It was becoming wishful thinking trying to get home by Mother's day. I was praying and hoping and crying over it. I really, really wanted to be home for Mother's day. I can't believe it's actually going to happen! And I get to go home with both my boys.
Sorting out my big bag o' drugs. Not too excited about all the extras I'm having to take. It took me a while to refill my tray having to figure out what my new doses are and referencing my discharge papers to figure out my new ones. A lot of them are the same as I got post-transplant. I ended up staying up way longer than I wanted just trying to get this all done. But so happy to be doing this at home! 
My hospital loot, haha. I got a lot of stuff! 
My friend's daughter picked out some shiny cool and fashionable sandals for me! She and I are the same size (for now) and have a lot of the same taste in stuff. I also got an entire basket filled with goodies! A travel mug, tea, journal, clips, lotion, and I'm sure I'm missing something. I felt so loved and blessed looking at all this and thinking about all the friends and family who visited, prayed, called, texted, messaged, and were there for Baba and NJ.
Ah, Dot on the couch all comfy! Couldn't get mad because she's so cute and I missed her too! Baba said she hardly ate while I was gone. She was moping around and hardly left her bed. He said she'd go and sit at the end of the driveway and look on as if she was waiting for me. We even tried to FaceTime so that she'd know I was ok and coming back. She didn't quite get it. She probably thought it was a video. I felt bad and so did Baba to see her sad and not eat. I was waiting to go home too since our poor, sweet, old doggy was all sad. 
So nice to sit on our comfy couch, put my feet up, and just be. Not the same old hospital room, nurses coming in and out, no beeping machines, uncomfortable bed, being away from my boys and Dot. I'll feel even better after a good shower and snuggling up in my own bed to sleep. I might actually believe this really happened when I wake up in my own bed in my own house. Thank you,  God, it's going to be a great Mother's day! 

Friday, May 8, 2015

Day two of IVIG and off the insulin drip. Not fun and still need to have my sugar level checked, but at least it's not every hour! Baba stayed home today with NJ again. It was a later night than usual because of open house (and dinner after), plus awful Friday traffic. I did get to see my brother who is still in town and my dad who drove from far away. It made the day less lonely to see them. It was so hard on the days not seeing my boys though, I miss them so much. I want to be home with them, not stuck here! 

Thursday, May 7, 2015


Baba brought NJ after picking him up early from school. NJ showed me a whole big folder of work that he was sent home with. I loved seeing all the cool stuff he did. They left before traffic started though to make it back for open house and the science fair. 
I was so, so sad to be missing NJ's open house. I don't get to see all his work plastered all over the classroom, how his work has improved, how the teacher decorated the room, say hi to the other parents and talk to the teacher. I won't be there to see him glow with pride, show us around, talk to his friends and teacher, or to congratulate him on his hard work. Maybe it's a bit over dramatic, but this is what I hate most about being sick. Missing these moments. I know it's not the end of the world, it's a tiny thing in the big scheme of things. But it's just another thing that's chipping away at me through a lifetime of missing things. Instead, here I am by myself. Another thing that made me sad today... I needed a new IV. I used to care less about it, but now it's a pain because my veins have been so over used throughout my life that it always takes a few tries. What happen to it being super easy and nearly painless?! I must be getting old and my body is waring down. They also started me on the IVIG treatment. Felt pretty awful during and after. The good news is, I have wonderful, loving friends that went to NJ's open house as my proxy and in support of him. Can't thank you all enough for your support... Uncle Dan, Auntie Becca, Uncle Wayne, Auntie Charmy, and little Joshua. NJ is blessed to have you (and so are we)! 

Wednesday, May 6, 2015

Baba came and stayed longer. Our sweet friend went to pick NJ up from school and keep him company for a bit (thank you Charmy and Joshua)! Then after her work, another sweet friend came by to stay with him for the rest of the time. She helped him with homework, played, and had dinner together. It was a nice relief for us to have some time together and for NJ to also have a break and spend time with others (thank you Rebecca and Dan)! I got lots of photos and text updates which were awesome! He really enjoyed the day with some of his favorite people. :) 

Tuesday, May 5, 2015


Rough day, remembering this is the day we got engaged eleven years ago. It's not something we really celebrate, but still it's depressing not being able to see him today. He offered to skip judo, but I told him it would be good for NJ to go and keep his routine. Plus he can rest from all the driving back and forth. Dad came to visit again and so did some good friends who offered to bring me dinner. Very thoughtful, but my sugar has gone crazy high. (Thank you, Emily and Rex!)

Monday, May 4, 2015

I get to see the boys a little longer on NJ's short day. Even though we were mostly silent, it was nice to have them keep me company. NJ did a good job with his homework on the little stool with a table. 

Sunday, May 3, 2015

Dad came by in the morning with some Taiwanese breakfast for me. Too bad I couldn't eat any of it. Baba and NJ came by after church. I know NJ dressed himself since he's wearing a striped shirt and plaid shorts. He wears what he likes, but it doesn't always go together. It's cute. Later on some friends visited with their son. They had a pretty full day, it was good to see them (thanks Jason, Marnie, and Joshua).